We made the trip back to Lurie’s at Central DuPage Hospital today to support Megan as she starts her battle with cancer. The people here are just amazing,and I am so thankful that they make Megan feel so comfortable. I know I have said it before, but this is really an amazing place for kids.
My wife and I met with Dr. Hayani this morning. He explained that Megan’s pathology reports came back, and her cancer now has a name. She has “Alveolar Rhabdomyosarcoma“. It is a cancer that starts in the soft tissues of the body. Megan’s actually started with a tumor in her left forearm, and has now traveled to other parts of her body. Cancer is cancer, but at least knowing exactly what type Megan is experiencing helped to bring some closure to the diagnosis, and now we can focus on her treatment.
During our meeting with Dr. Hayani, he thoroughly explained the intensive treatment program that Megan will be going through. She will have 54 weeks of treatment along her road to recovery. It is heartbreaking to hear that your child will be experiencing an entire year of chemo, and it took some time to get past that initial shock. However, thanks to my wife, I understand that her chemo treatments represent hope and not heartache. After meeting with Dr. Hayani, we all went in to discuss this with Megan.
Megan has amazed me throughout this entire experience. This morning, Dr. Hayani told her that she would be undergoing a year’s worth of chemo, would lose her hair, and was told that she would not be able to attend school on a regular basis for the rest of this year. Megan never shed a single tear. She is so strong and ready for the battle ahead.
At 3:36 p.m. on 1/3/15, we watched Megan get her first chemotherapy treatment. We are waiting to see if she has any side effects today. She will receive a treatment each day for the next four days for a total of five treatments. If all goes well, Megan will get to come home on Wednesday after her final treatment of this round. She will then have to come back to Lurie’s once a week for the next two weeks before she checks back in for another five straight days of treatment.
As always, we have so many people to thank, and I know I always miss someone, but please don’t doubt our gratitude to the hundreds of people who have sent positive messages to Megan. Seeing over 400 supportive comments on this blog from friends, family, community members, and even some people we have never met, has meant the world to Megan. Knowing everyone is behind her has strengthened her resolve for the battle ahead.
Thank you to Deb’s cousin Sherry Henrichs for meeting us at Lurie’s this morning, and for Megan’s care package. It is nice to have a medical professional in the family who can help us decipher the medical lingo. She is a gem!!!
Thank you to Aunt Keely for taking Megan’s older sister, Kenzi, to stay with her today and tomorrow. As our family travels this journey together, I can’t help but worry about Kenzi. She is such an amazing and strong young lady, and I want to make sure she knows that her mom and I will be there for her throughout this process. I love her more than words can express.
Thank you to Jack Micetich and Sherfy Browning for coming to see Megan last night. They brought her a “Kim of Queens” sweatshirt, but instead put “Megan of Queens” on the front. She absolutely loved it.
The battle officially began today, and Megan is committed to persevere. With the love and support of her family, friends, and community, she is ready to WIN!!!!!